Dr. Adame's Holistic Approach to PANDAS/PANS Care

Over the last 3 years, we have had the privilege of being part of the healing journey of over 40 children affected with PANDAS/PANS.

Here is a very general overview of my holistic "Veggies Over Pills" Approach. As always, algorithms and protocols are starting points. I am always ready to pivot and change course depending on the child's journey and their response to interventions. And we always operate with shared decision-making with families.

We start with a thorough review of previous records, lab work, diagnostic testing, in-depth intake forms, and treatment goals. Followed by:

• Diagnostic

• Extensive initial lab work including infectious triggers (NOT just strep), micronutrients, allergy testing, screens for autoimmune, MTHFR, and other conditions. I send the order to the lab of your choice and you can use your insurance.

• Whole Genome Sequencing Genetic Testing through Baylor Genetics

• FRAT testing if indicated or requested by family

• Treatment

• Holistic/Non-Pharma

• High-Protein, High-Fiber, Anti-Inflammatory Nourishment (Brain Boosters Book)

• Support with "transition foods" such as Amrita Bars and Elements Truffles Protein Powder

• Restorative Sleep with individualized support

• Mindfulness-Based Stress Reduction with Meditation, Community Yoga, and Group Tapping/EFT

• Reduction of toxins including food dyes and ultra-processed foods

• Physical Activity

• Social Connection

• Non-Pharma Emotional Regulation with Breathing Pacing, Calm Carry, or Truvaga Vagal Nerve Stimulator

• Earthing

• Western/Pharma

• PANDAS Physician Network Treatment Algorithm

• NSAIDs (short term)

• Antibiotics (tailored to history and lab results, short term)

• Steroids (tailored to history, exposure, previous response)

• IVIG (I order serial monthly infusions for one year, but the ultimate infusion pattern is determined by insurance approval, patient outcome, and family preference)

• Referral to ENT for tonsillectomy

• Low Dose Naltrexone

• Leucovorin

• Magnesium (at high doses to support stress reduction and sleep)

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• Algae-based Omega-3 with at least 1000 mg EPA/DHA combo

• Vitamin D

• Probiotics

• Mold Detox/Anti-fungals if indicated by history or labs

• Additional supplements based on lab results

• Additional pharmaceuticals depending on needs, goals, additional diagnoses, and quality of life

• Follow Up and Ongoing Support

• Close tracking of symptoms and response to interventions such as with Unhide

• Frequent check-ins by chat and virtual appointments

• Flare-Up Action Plan and Support

• We encourage joining of reputable parent groups such as ASPIRE PANS

• Goal is to UNMEDICATE whenever possible with close medical supervision and support for a Veggies Over Pills outcome

Are you ready to join the Culver Peds PANDAS/PANS Clinic? The first step is to register for a group info session to determine if we are the right practice for your child.

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