IVIG: Making Infusion Days Joyful Experiences
IVIG: Making Infusion Days Positive Experiences
At Culver Pediatrics Center, one of the cornerstone treatments for children affected by PANDAS/PANS is Intravenous Immunoglobulin G (IVIG), which is in infusion given over two days either at a hospital-based or free-standing infusion center. IVIG can also be given at home with a reputable home health agency. The location is often determined by your insurance company.
IVIG therapy can be a frightening experience for children because it does require IV insertion. We recommend the following steps to make infusion days less scary and maybe even a little joyful.
Please discuss IVIG preparation and report any side effects to your child's physician.
Reassure the child: Receiving IVIG can be stressful, so help the child understand the procedure in an age-appropriate way and explain that the process is designed to help them feel better.
Request A Facility Tour BEFORE infusion day
Hydration is Key To Prevent Side Effects
Start hydrating at least 2 days before the infusion
Continue hydration on the infusion days and for at least 3 days after
In addition to free water, we recommend Cure Hydration
Provide emotional support and comfort:
Favorite snacks. For a convenient, tasty, high-protein snack with clean ingredients, we recommend Amrita Bars
Soft, warm blanket and pillows (hospitals and infusion centers can be cold!)
Favorite lovey
Favorite books
Toys and games like puzzles for distraction
Truvaga Vagal Nerve Stimulator
Are you ready to join the Culver Peds PANDAS/PANS Clinic? The first step is to register for a group info session to determine if we are the right practice for your child.
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